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SERIAL
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Serial Number |
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FIRST
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INTERVIEWER:For your information:.. You are in the questionnaire for serial number [Serial] - To enter the questionnaire press and . - To update the Admin details, press. |
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INTDAT
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(See INTDATMM and INTDATYY for month and year of interview) INTERVIEWER:Today's date. Amend if not correct. Else, press to continue. |
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EINAME1
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First name of ELSA respondent |
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EINAME2
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Surname of ELSA respondent |
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EIDATLA
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Date of last ELSA interview |
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EIINTRO
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You may be aware that [^deceased ELSA respondent's name] generously participated in the ELSA study before [^his/her] death. [^His/Her] contribution was very valuable. We would find it extremely helpful to have some information about the final year of [^his/her] life. I appreciate that this may upset or distress you. All the information collected is strictly confidential, and will be held anonymously. INTERVIEWER:Press 1 and to continue. |
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EIINTR2
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Before we begin, I'd like to ask you some questions about you. |
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EIRREL
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What was your relationship to [^deceased ELSA respondent's name]? Were you [^his/her]... |
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EIRFRI
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Would you say [^he/she] was a close friend, or not? |
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SURVSP
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INTERVIEWER ASK OR CODE:Did [^deceased ELSA respondent's name] have a surviving spouse/partner at the time of [^his/her] death? |
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NUMMTH
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INTERVIEWER:Enter the number of months the respondent has known the deceased. |
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NUMYR
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INTERVIEWER:Enter the number of years the respondent has known the deceased. |
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EIRAGE
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What was your age last birthday? |
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EIRSEX
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INTERVIEWER:Ask or code respondent's sex. |
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EILONG
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I would now like to ask you a few questions about things that happened at the time of [^deceased ELSA respondent's name]'s death. How long had [^he/she] been ill before [^he/she] died? |
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EISUDD
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Would you say [^his/her] death was unexpected? |
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EISUDEX
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Why was [^his/her] death expected? |
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EIEXPT
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Would you say [^his/her] death was expected, or unexpected? |
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EIEXPTOT
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INTERVIEWER:Enter details. |
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EICAUS
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What was the main cause of [^deceased ELSA respondent's name]'s death? |
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EICAUSOT
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INTERVIEWER:Please enter details of the cause of death. |
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EIDATED
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May I ask, on what date did [^he/she] die? INTERVIEWER:Enter the day of month at this question. |
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EIDATEM
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INTERVIEWER:Enter month at this question. |
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EIDATEY
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INTERVIEWER:Enter year at this question. |
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EIPLAC
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And where did [^deceased ELSA respondent's name] die? Was it ...READ OUT... |
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EIPLACOT
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(What was this other place?) INTERVIEWER:Write in. |
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EIPLACOH
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In whose home did [^deceased ELSA respondent's name] die? |
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EIPLCN
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On how many different occasions did [[^deceased ELSA respondent's name] stay in [place] in the last two years before [^he/she] died? INTERVIEWER:If appropriate include more than one person's home INTERVIEWER:Specify the number of times. |
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EIPLCL
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In total, how long did [^deceased ELSA respondent's name] stay in [^place from EiPlac] in the last two years before [^he/she] died? INTERVIEWER:If stayed on more than one occasion add the times together. |
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EILIVINT
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I would now like to ask you some questions about where [^deceased ELSA respondent's name] lived or stayed overnight as a result of [^his/her] health in the two years before [^he/she] died. |
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EILIVE
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How many other types of places did [^deceased ELSA respondent's name] stay in overnight during the two years before [^he/she] died, because of [^his/her] health? INTERVIEWER:Include NHS and privately-owned establishments CODE ALL THAT APPLY. |
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EIHOMESTY
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In whose home did [^deceased ELSA respondent's name] stay? |
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EILOTHA
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On how many different occasions did [^deceased ELSA respondent's name] stay in another person's home in the last two years before [^he/she] died? INTERVIEWER:Enter the number of times. |
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EILOTHB
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In total, how long did [^deceased ELSA respondent's name] stay in another person's home in the last two years before [^he/she] died? INTERVIEWER:If stayed on more than one occasion add the times together. |
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EILHOSPA
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On how many different occasions did [^deceased ELSA respondent's name] stay in a hospital in the last two years before [^e/she] died? INTERVIEWER:Enter the number of times. |
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EILHOSPB
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In total, how long did [^deceased ELSA respondent's name] stay in a hospital in the last two years before [^he/she] died? INTERVIEWER:If stayed on more than one occasion add the times together. |
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EILHPCEA
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On how many different occasions did [^deceased ELSA respondent's name] stay in a hospice in the last two years before [^he/she] died? INTERVIEWER:Enter the number of times. |
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EILHPCEB
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In total, how long did [^deceased ELSA respondent's name] stay in a hospice in the last two years before [^he/she] died? INTERVIEWER:If stayed on more than one occasion add the times together. |
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EILNURSA
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On how many different occasions did [^deceased ELSA respondent's name] stay in a nursing home in the last two years before [^he/she] died? INTERVIEWER:Enter the number of times. |
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EILNURSB
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In total, how long did [^deceased ELSA respondent's name] stay in a nursing home in the last two years before [^he/she] died? INTERVIEWER:If stayed on more than one occasion add the times together. |
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EILRESA
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On how many different occasions did [^deceased ELSA respondent's name] stay in a residential home in the last two years before [^he/she] died? INTERVIEWER:Enter the number of times. |
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EILRESB
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In total, how long did [^deceased ELSA respondent's name] stay in a residential home in the last two years before [^he/she] died? INTERVIEWER:If stayed on more than one occasion add the times together. |
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EILMIXA
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On how many different occasions did [^deceased ELSA respondent's name] stay in mixed nursing/residential home in the last two years before [^he/she] died? INTERVIEWER:Enter the number of times. |
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EILMIXB
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In total, how long did [^deceased ELSA respondent's name] stay in mixed nursing/residential home in the last two years before [^he/she] died? INTERVIEWER:If stayed on more than one occasion add the times together. |
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EILSHELA
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On how many different occasions did [^deceased ELSA respondent's name] stay in sheltered housing in the last two years before [^he/she] died? INTERVIEWER:Enter the number of times. |
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EILSHELB
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In total, how long did [^deceased ELSA respondent's name] stay in sheltered housing in the last two years before [^he/she] died? INTERVIEWER:If stayed on more than one occasion add the times together. |
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EILIVEA
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How many other types of places did [^he/she] stay in during the two years befor [^he/she] died? INTERVIEWER:If more than one other place, record each place at a separate question. |
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EILIVEB
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(What was this other place)? INTERVIEWER:Write in the other place. |
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EILEXTA
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On how many different occasions did [^deceased ELSA respondent's name] stay in this place in the last two years before [^he/she] died? INTERVIEWER:Enter the number of times. |
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EILEXTB
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In total, how long did [^deceased ELSA respondent's name] stay in this place in the last two years before [^he/she] died? INTERVIEWER:If stayed on more than one occasion add the times together. |
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EIDISTPH
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We'd like to ask you about [^deceased ELSA respondent's name]'s physical health and activity. During [^his/her] last year, which of these descriptions fits [^his/her] experience best?1 [^He/She] was active and disability free, and died suddenly 2 [^He/She] was mostly active and disability free, but declined during the last few months before [^he/she] died 3 [^He/She] had times of being seriously disabled, mixed with times of being active 4 [^He/She] gradually become more and more disabled, without times of being active |
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EIADLINT
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I would now like to ask you about problems [^deceased ELSA respondent's name] might have had in [^his/her] everyday life, before [^he/she] died. The next questions are about help [^he/she] may have received. Please tell me if [^he/she] had received any help because of a physical, mental, emotional or memory problem during the last three months of [^his/her] life. INTERVIEWER:Press and to continue. |
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EIADLA
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During the last three months of [^his/her] life, did [^deceased ELSA respondent's name] need help with ... INTERVIEWER:READ OUT ... dressing, including putting on shoes and socks? |
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EIADLB
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(During the last three months of [^his/her] life, did [^deceased ELSA respondent's name] need help with ...) INTERVIEWER:READ OUT ... walking across a room? |
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EIADLC
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(During the last three months of [^his/her] life, did [^deceased ELSA respondent's name] need help with ...) INTERVIEWER:READ OUT ... bathing or showering? |
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EIADLD
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(During the last three months of [^his/her] life, did [^deceased ELSA respondent's name] need help with ...) INTERVIEWER:READ OUT ... eating such as cutting up [^his/her] food? |
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EIADLE
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(During the last three months of [^his/her] life, did [^deceased ELSA respondent's name] need help with ...) INTERVIEWER:READ OUT ... getting in or out of bed? |
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EIADLF
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(During the last three months of [^his/her] life, did [^deceased ELSA respondent's name] need help with ...) INTERVIEWER:READ OUT ... using the toilet, including getting up and down? |
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EIADLG
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(During the last three months of [^his/her] life, did [^deceased ELSA respondent's name] need help with ...) INTERVIEWER:READ OUT ... preparing hot meals? |
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EIADLH
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(During the last three months of [^his/her] life, did [^deceased ELSA respondent's name] need help with ...) INTERVIEWER:READ OUT ... shopping for groceries? |
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EIADLI
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(During the last three months of [^his/her] life, did [^deceased ELSA respondent's name] need help with ...) INTERVIEWER:READ OUT ... making telephone calls? |
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EIADLJ
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(During the last three months of [^his/her] life, did [^deceased ELSA respondent's name] need help with ...) INTERVIEWER:READ OUT ... taking medication? |
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EIADLA2
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In total, for how long had [^he/she] needed help with dressing when [^he/she] died? |
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EIADLA2W
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In total, how many weeks was this? |
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EIADLA2M
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In total, how many months was this? |
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EIADLA2Y
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In total, how many years was this? |
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EIADLB2
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For how long had [^he/she] needed help with walking, when [^he/she] died? |
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EIADLB2W
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In total, how many weeks was this? |
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EIADLB2M
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In total, how many months was this? |
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EIADLB2Y
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In total, how many years was this? |
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EIADLC2
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In total, for how long had [^he/she] needed help with bathing or showering, when [^he/she] died? |
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EIADLC2W
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In total, how many weeks was this? |
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EIADLC2M
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In total, how many months was this? |
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EIADLC2Y
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In total, how many years was this? |
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EIADLD2
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In total, for how long had [^he/she] needed help with eating when [^he/she] died? |
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EIADLD2W
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In total, how many weeks was this? |
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EIADLD2M
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In total, how many months was this? |
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EIADLD2Y
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In total, how many years was this? |
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EIADLE2
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In total, for how long had [^he/she] needed help getting in or out of bed, when [^he/she] died? |
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EIADLE2W
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In total, how many weeks was this? |
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EIADLE2M
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In total, how many months was this? |
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EIADLE2Y
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In total, how many years was this? |
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EIADLF2
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In total, for how long had [^he/she] needed help with using the toilet, when [^he/she] died? |
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EIADLF2W
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In total, how many weeks was this? |
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EIADLF2M
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In total, how many months was this? |
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EIADLF2Y
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In total, how many years was this? |
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EIADLG1
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(You said earlier that during the last three months of [^his/her] life [^deceased ELSA respondent's name] received help to preparehot meals.) Was that because of a health or memory problem? INTERVIEWER:If the respondent gives an actual reason, decide whether this was a problem with either their health or memory. |
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EIADLG2
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In total, for how long had [^he/she] needed help with preparing hot meals, when [^he/she] died? |
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EIADLG2W
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In total, how many weeks was this? |
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EIADLG2M
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In total, how many months was this? |
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EIADLG2Y
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In total, how many years was this? |
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EIADLH1
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(You said earlier that during the last three months of [^his/her] life [^deceased ELSA respondent's name] received help with shopping for groceries.) Was that because of a health or memory problem? INTERVIEWER:If the respondent gives an actual reason, decide whether this was a problem with either their health or memory. |
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EIADLH2
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In total, for how long had [^he/she] needed help with shopping for groceries, when [^he/she] died? |
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EIADLH2W
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In total, how many weeks was this? |
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EIADLH2M
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In total, how many months was this? |
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EIADLH2Y
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In total, how many years was this? |
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EIADLI1
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(You said earlier that during the last three months of [^his/her] life [^deceased ELSA respondent's name] received help to make phone calls.) Was that because of a health or memory problem? INTERVIEWER:If the respondent gives an actual reason, decide whether this was a problem with either their health or memory. |
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EIADLI2
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In total, for how long had [^he/she] needed help making telephone calls, when [^he/she] died? |
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EIADLI2W
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In total, how many weeks was this? |
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EIADLI2M
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In total, how many months was this? |
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EIADLI2Y
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In total, how many years was this? |
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EIADLJ1
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(You said earlier that during the last three months of [^his/her] life [^deceased ELSA respondent's name] received help with taking medication.) Was that because of a health or memory problem? INTERVIEWER:If the respondent gives an actual reason, decide whether this was a problem with either their health or memory. |
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EIADLJ2
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In total, for how long when [^he/she] died had [^he/she] needed help when taking medication? |
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EIADLJ2W
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In total, how many weeks was this? |
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EIADLJI2M
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total, how many months was this? |
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EIADLJI2Y
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In total, how many years was this? |
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EIADLK
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Were there any other activities that [^deceased ELSA respondent's name] had problems with in the last 3 months of [^his/her] life? |
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EIADLKO
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What other activities did they have problems with? |
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EIWHLP
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Thinking about the [^activity from EiADLA..K] that [^deceased ELSA respondent's name] had problems with, who usually helped [^deceased ELSA respondent's name] with [^this\these activity\ies]? CODE ALL THAT APPLY. |
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EIWHLPF
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Thinking about the [^activity from EiADLA..K] that [^deceased ELSA respondent's name] had problems with, who usually helped [^deceased ELSA respondent's name] with [^this\these activity\ies]? PROBE:Did anyone else help [^deceased ELSA respondent's name] with [^this\these activity\ies]? CODE ALL THAT APPLY. |
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EICOGINT
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Now I would like to ask you some questions about [^deceased ELSA respondent's name]'s memory and concentration during [^his/her] last year of life. |
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EICOGA
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Did [^deceased ELSA respondent's name] have difficulty remembering things about [^his/her] family and friends, like occupations, birthdays or addresses? Did he have ... READ OUT ... |
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EICOGB
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Did [^he/she] have difficulty remembering things that had happened recently? Did he have ... READ OUT ... |
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EICOGC
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Did [^he/she] have difficulty recalling conversations a few days after they had taken place? Did he have ... READ OUT ... |
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EICOGD
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Did [^he/she] have difficulty remembering [^his/her] address and telephone number? Did he have ... READ OUT ... |
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EICOGE
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Did [^he/she] have difficulty remembering what day and month it was? Did he have ... READ OUT ... |
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EICOGF
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Did [^deceased ELSA respondent's name] have difficulty remembering where things were usually kept? Did he have ... READ OUT ... |
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EICOGG
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Did [^he/she] have difficulty following a story in a book, on the radio or on the TV? Did he have ... READ OUT ... |
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EICOGH
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Did [^he/she] have difficulty making decisions on everyday matters? Did he have ... READ OUT ... |
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EICOGI
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Did [^he/she] have difficulty handling financial matters, like [^his/her] pension or dealingwith the bank? Did he have ... READ OUT ... |
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EICOGJ
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Did [^he/she] ever forget what had been said and repeat the same question again and again? IF YES, PROBE:Did [^he/she] do this occasionally or frequently? |
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EICOGK
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Did [^deceased ELSA respondent's name] have difficulty in interpreting surroundings, such as knowing where [^he/she] was, or distinguishing between different types of people, such as doctors, visitors and relatives? Did he have ... READ OUT ... |
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EICOGL
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Did [^he/she] have difficulty finding the way about [^the/ his/her home] or finding the toilet? Did he have ... READ OUT ... |
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EICOGM
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When speaking, did [^he/she] sometimes have difficulty finding the right word, or sometimes use the wrong words? IF YES, PROBE:Did [^he/she] do this occasionally or frequently? |
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EICOGN
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Did [^deceased ELSA respondent's name] sometimes repeat the same word or phrase over and overagain? |
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EICOGO
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Did [^his/her] thinking seem muddled at times? |
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EICOGP
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How long were these changes or difficulties with memory and concentration present? PROBE:From about how long before [^he/she] died? |
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EICOGPW
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In total, how many weeks was this? |
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EICOGPM
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In total, how many months was this? |
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EICOGPY
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In total, how many years was this? |
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EICOGQ
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Did these changes or difficulties develop gradually or did they come on suddenly? |
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EICOGR
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Were there marked fluctuations in [^his/her] level of attention or alertness? |
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EICOGS
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How long were these fluctuations in [^his/her] levels of attention or alertness present? PROBE:From about how long before [^he/she] died? |
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EICOGSW
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In total, how many weeks was this? |
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EICOGSM
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In total, how many months was this? |
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EICOGSY
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In total, how many years was this? |
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EITIMEIN
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Now I'm going to describe some difficult behaviors, which only a minority of people experience, and which can make caring for them more of a challenge. I would like you to tell me how frequently, if at all [^deceased ELSA respondent's name] engaged in these behaviors during [^his/her] last year of life. We would like to know if [^deceased ELSA respondent's name] engaged in the behavior often, sometimes, rarely, or never. INTERVIEWER:Press and to continue. |
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EIPBHA
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During [^his/her] last year of life, how often did [^deceased ELSA respondent's name] have temper tantrums? Was it often, sometimes, rarely, or never? |
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EIPBHB
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And did [^deceased ELSA respondent's name] make violent threats or attempts? How often did [^he/she] do this? |
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EIPBHC
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How often did [^deceased ELSA respondent's name] break things on purpose? |
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EIPBHD
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How often did [^deceased ELSA respondent's name] cause complaints from the community? |
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EIPBHE
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During [^his/her] last year of life, how often did [^deceased ELSA respondent's name] engage in st[range or peculiar behaviour? |
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EIPBHF
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And how often did [^deceased ELSA respondent's name]'s behaviour cause complaints from family members? |
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EIMHFINT
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I would now like to ask you a few questions about [^deceased ELSA respondent's name]'s mood during the last year of [^his/her] life. |
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EIMHFA
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Did [^he/she] seem to lose interest or enjoyment in most things, during [^his/her] last year of life? |
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EIMHFC
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Do you think [^he/she] was depressed during [^his/her] last year of life? IF YES, PROBE: Was [^he/she] depressed sometimes or frequently? |
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EIMHFE
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Did [^he/she] feel so bad that it affected every part of [^his/her] life, (like [^his/her] work, friendship and family life) during [^his/her] last year of life? |
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EIMHFF
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How long had [^he/she] felt like this, when [^he/she] died? INTERVIEWER:Code how the answer is given. |
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EIMHFFW
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In total, how many weeks was this? |
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EIMHFFM
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In total, how many months was this? |
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EIMHFFY
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In total, how many years was this? |
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EIMHFG
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How often do you think [^deceased ELSA respondent's name] felt happy during [^his/her] last year of life? |
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EIMHFH
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How often do you think [^deceased ELSA respondent's name] felt contented or at peace during [^his/her] last year of life? |
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EIMHFI
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And how about the last three months of [^his/her] life, how often do you think [^deceased ELSA respondent's name] felt contented or at peace during this time? |
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EIHRINT
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The next questions are about problems [^deceased ELSA respondent's name] may have had with [^his/her] eyesight or hearing, during the last 3 months of [^his/her] life. |
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EIEYE
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Was [^deceased ELSA respondent's name]'s eyesight (using glasses or corrective lens as usual)...READ OUT... |
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EIOPT
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Did a doctor ever tell [^deceased ELSA respondent's name] that [^he/she] had any of these conditions? INTERVIEWER:Read out each in turn and code all that apply. Include diabetic retinopathy in code 2. Include age related maculopathy in code 3. |
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EICAT
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Did [^deceased ELSA respondent's name] ever have cataract surgery? |
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EIHEAR
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Was [^deceased ELSA respondent's name]'s hearing (using a hearing aid as usual)...READ OUT... |
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EICAINT
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I would now like to ask you a few questions about other conditions that [^deceased ELSA respondent's name] may have suffered from. |
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EICAHA
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You told me earlier that [^deceased ELSA respondent's name] died following a heart attack. Did a doctor ever tell [^him/her] that [^he/she] had had a heart attack, before the one that led to [^his/her] death? |
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EICAST
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You told me earlier that [^deceased ELSA respondent's name] died following a stroke. Did a doctor ever tell [^him/her] that [^he/she] had had a stroke, before the one that led to [^his/her] death? |
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EIDIAA
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[^ And apart from this did\ Did] a doctor ever tell [^him/her] that [^he/she] had any [^other] of the conditions on this card? PROBE:What others? CODE ALL THAT APPLY. |
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EIDIX
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INTERVIEWER:Enter the name of the other heart condition. |
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EIBPST
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Did [^deceased ELSA respondent's name] have high blood pressure during the last 12 months of [^his/her] life? |
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EIMDA
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Was [^deceased ELSA respondent's name] taking any medicines, tablets or pills for high blood pressure during the last 12 months of [^his/her] life? |
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EIAGA
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Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had angina? INTERVIEWER:Enter the age in years. |
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EIYR1
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Did [^deceased ELSA respondent's name] have angina during the last 12 months of [^his/her] life? |
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EIHMED
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Was [^deceased ELSA respondent's name]taking any taking any medication to thin the blood such as Warfarin, Plavix, Ticlid, or other blood-thinning medication during the last 12 months of [^his/her] life? |
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EIAGB
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Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had had a heart attack (including myocardial infarction or coronary thrombosis)? INTERVIEWER:Enter the age in years. |
|
EINMMI
|
|
How many heart attacks (including myocardial infarction or coronary thrombosis), if any, did [^deceased ELSA respondent's name] have in the last 12 months according to a doctor?" |
|
EIAGC
|
|
Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had congestive heart failure? INTERVIEWER:Enter the age in years. |
|
EIAGK2
|
|
Did [^deceased ELSA respondent's name] have a heart murmur during the last 12 months of [^his/her] life? |
|
EIAGL
|
|
Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had an abnormal heart rhythm? INTERVIEWER:Enter the age in years. |
|
EIAGL2
|
|
Did [^deceased ELSA respondent's name] have an abnormal heart rhythm during the last 12 months of [^his/her] life? |
|
EIAGD
|
|
Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had diabetes or high blood sugar? INTERVIEWER:Enter the age in years. |
|
EIAGDI
|
|
Did [^deceased ELSA respondent's name] inject insulin for diabetes during the last 12 months of [^his/her] life? |
|
EIMDB
|
|
Did [^deceased ELSA respondent's name] take any tablets, pills or other medicines for diabetes during the last 12 months of [^his/her] life? |
|
EIAGM
|
|
Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had had a stroke? INTERVIEWER:Enter the age in years. |
|
EINMST
|
|
How many strokes, if any, did [^deceased ELSA respondent's name] have in the last 12 months according to a doctor?"0 1 2 3 3 or more EiCYR. Did [^deceased ELSA respondent's name] have high cholesterol during the last 12 months [^his/her] life?" |
|
EIMDC
|
|
Was [^deceased ELSA respondent's name] taking medication to lower [^his/her[ cholesterol level during the last 12 months of [^his/her] life?" |
|
EIAGN
|
|
Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had [^name of other condition from EiDix]? INTERVIEWER:Enter the age in years. |
|
EIAGN2
|
|
Did [^deceased ELSA respondent's name] have [^name of other condition from EiDix] during the last 12 months of [^his/her] life? |
|
EICACA
|
|
You told me earlier that [^deceased ELSA respondent's name] died of cancer. Did a doctor ever tell[^him/her] that [^he/she] had cancer? |
|
EILNG
|
|
Was [^deceased ELSA respondent's name] taking medication or other treatment for [^his/her] lung condition during the last 12 months of [^his/her] life? |
|
EIAMA
|
|
Was [^deceased ELSA respondent's name] taking medication or other treatment for [^his/her] asthma during the last 12 months of [^his/her] life? |
|
EIART
|
|
Do you know which type or types of arthritis [^deceased ELSA respondent's name] had? Was it CODE ALL THAT APPLY. |
|
EIAGF
|
|
Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had arthritis? INTERVIEWER:Enter the age in years. |
|
EIAGG
|
|
Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had cancer or a malignant tumour? INTERVIEWER:Enter the age in years. |
|
EICANA
|
|
In which organ or part of [^his/her] body did the cancer or tumour start? CODE ONE ONLY |
|
EICANO
|
|
INTERVIEWER:Record where cancer or tumour started." |
|
EICANM
|
|
Had [^deceased ELSA respondent's name] received any treatment for [^his/her] cancer or malignant tumour in the last 12 months of [^his/her] life?" |
|
EIPRK
|
|
Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had Parkinson's disease? INTERVIEWER:Enter the age in years. |
|
EIAGH
|
|
Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had emotional, nervous or psychiatric problems? INTERVIEWER:Enter the age in years. |
|
EIPSY
|
|
What type of emotional, nervous or psychiatric problems did [^he/she] have? PROBE: What others? CODE ALL THAT APPLY. |
|
EIYRC
|
|
Did [^he/she] have these problems during the last 12 months of [^his/her] life? |
|
EIAGI
|
|
Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by a doctor that [^he/she] had Alzheimer's Disease? INTERVIEWER:Enter the age in years. |
|
EIAGJ
|
|
Approximately how old was [^deceased ELSA respondent's name] when [^he/she] was first told by adoctor that [^he/she] had dementia, senility or any other serious memory impairment? INTERVIEWER:Enter the age in years. |
|
EILEUK
|
|
Did [^deceased ELSA respondent's name] have any of the following blood disorders... CODE ALL THAT APPLY |
|
EIAGK
|
|
Approximately how old was [^deceased ELSA respondent's name] first told by a doctor that [^he/she ] had leukaemia or lymphoma? INTERVIEWER:Enter age in years."[range:0..110] EIAGO. Did [^he/she] have any other major illnesses in the year preceding [^his/her] death? |
|
EIAGOA
|
|
INTERVIEWER:Write in any other major illnesses. |
|
EIMEDINT
|
|
I would now like to ask you about any joint replacement or resurfacing [^deceased ELSA respondent's name] may have had. |
|
EIMEDA
|
|
Did [^he/she] ever have a joint replacement or resurfacing? |
|
EIJIAA
|
|
Did [^he/she] ever have a joint replacement or resurfacing in the last year before ^heshe died?" |
|
EIMEDN
|
|
How many such joints did [^he/she] have replaced or resurfaced? |
|
EIMEDB
|
|
Which was the [^first\second etc] joint [^he/she] had replaced or resurfaced? |
|
EIMEDC
|
|
In what year was the [^ joint mentioned at EiMedB] replaced or resurfaced? INTERVIEWER:Specify the year. |
|
EIMEDCA
|
|
Was the [^ joint mentioned at EiMedB] replaced or resurfaced during [^his/her] last year of life? |
|
EIHIT
|
|
Did [^deceased ELSA respondent's name] provide written instructions about the treatment or care [^he/she] wanted to receive during the final days of [^his/her] life, sometimes called a Living Will, Advance Decision or Advanced Directive? |
|
EIHIL
|
|
Did these instructions express a desire to limit care in certain situations? |
|
EIHLA
|
|
Did [^deceased ELSA respondent's name] (also) make any legal ar[rangements for a specific person or persons to make decisions about [^his/her] care or medical treatment if [^he/she] could not make those [^him/herself]? This is sometimes called a Lasting Power of Attorney. |
|
EIHLN
|
|
Who had that authority, (that is, what was their relationship to [^deceased ELSA respondent's name] )? CODE all that apply. |
|
EIEXPINT
|
|
I'd now like to ask you some questions about any expenses which [^deceased ELSA respondent's name] incurred as a result of the medical care [^he/she] received in the year before [^he/she] died. Before I do that, though, I'd like to assure you again that everything you have already told me and anything else you tell me will be kept completely confidential. INTERVIEWER:Press and to continue. |
|
EIEXPS
|
|
Did [^deceased ELSA respondent's name] receive any medical treatments other than on the NHS? |
|
EIPHI
|
|
Were any of the costs of these medical treatments covered by private health insurance? |
|
EIFHLP
|
|
Other than insurances did [^deceased ELSA respondent's name] receive any financial help to pay for any of these medical treatments? |
|
EIFWHO
|
|
Who else did [^deceased ELSA respondent's name] receive financial help from? CODE ALL THAT APPLY. |
|
EIFWHOA
|
|
INTERVIEWER:Record who [^deceased ELSA respondent's name] received financial help from. |
|
EITOTLB
|
|
Was it...... BRACKETS (250, 1000, 5000, 10000) [Bracket results are recorded in EiTol, EiTou, EiToe, EiTor] |
|
EIFAMTB
|
|
Was it...... BRACKETS (250, 1000, 5000, 10000) [Bracket results are recorded in EiFAl, EiFAu, EiFAe, EiFAr] |
|
EIHPAY
|
|
How were these costs financed? CODE ALL THAT APPLY |
|
EIHPAYO
|
|
INTERVIEWER:Write in how the costs are financed. |
|
EIFUN
|
|
I asked you earlier about expenses incurred for the heath care that [^deceased ELSA respondent's name] received. Now I would like to ask you about expenses which were associated with [^his/her] funeral, or legal fees related to [^his/her] death. INTERVIEWER:Press and to continue. |
|
EIDCSTB
|
|
Did [^deceased ELSA respondent's name] have an insurance policy specifically designed to cover [^his/her] funeral expenses? |
|
EIFUINS
|
|
INTERVIEWER:if the insurance is not paid out yet, record the expected amount to be paid out. In total, how much did this insurance pay out? |
|
EIDCSTA
|
|
What was the total cost of the funeral expenses and legal fees[^after the insurance payment]? |
|
EIFUNREL
|
|
Who [^else] paid for the funeral expenses (that is what is their relationship to [^deceased ELSA respondent's name])? CODE ALL THAT APPLY. INTERVIEWER:Only code once for respondent. For example if respondent is son or daughter code 'Respondent', and not son or daughter. Only code 'Son' or 'Daughter' for those other than respondent. |
|
EIRRELOT
|
|
INTERVIEWER:The respondent has answered 'other' relationship:Write in relationship to [^deceased ELSA respondent's name]. |
|
EITOTRES
|
|
In total, how much did you pay towards [^deceased ELSA respondent's name]'s funeral expenses? |
|
EITOTSPS
|
|
In total, how much did the husband/wife pay towards [^deceased ELSA respondent's name]'s funeral expenses? |
|
EITOTPRT
|
|
In total, how much did the partner/cohabitee pay towards [^deceased ELSA respondent's name]'s funeral expenses? |
|
EIFUNUM
|
|
How many [[^relatives from EIFUNREL] paid towards the funeral expenses? INTERVIEWER:If same relationship, do not include respondent here. |
|
EITOTREL
|
|
In total, how much did the [^first\second etc] [^relative from EIFUNREL] pay towards the funeral expenses? INTERVIEWER:Enter amount in pounds. |
|
EIWORINT
|
|
Now I'd like to ask you some questions about [^deceased ELSA respondent's name]'s employment situation since we last spoke to [^him/her]. |
|
EIWORKA
|
|
Did [^deceased ELSA respondent's name] do any paid work in the time since we last interviewed [^him/her] on [^date of deceased ELSA respondent's last interview]. |
|
EIWHNTM
|
|
When was the last time [^deceased ELSA respondent's name] worked? INTERVIEWER:Enter month. |
|
EIWHNTY
|
|
(When was the last time [^deceased ELSA respondent's name] worked?) INTERVIEWER:Enter year. |
|
EISTOP
|
|
Had [^deceased ELSA respondent's name] stopped working before [^his/her] death? |
|
EIWHEN
|
|
In what month and year did [^he/she] stop working? INTERVIEWER:Enter month. |
|
EIWHENY
|
|
INTERVIEWER:Enter year. |
|
EIWHY
|
|
Why did [^he/she] stop working? INTERVIEWER:Code all that apply. |
|
EIWHYOTH
|
|
What was the reason? INTERVIEWER:Write in. |
|
EIPENM
|
|
Was [^he/she] a member of a private pension plan, including employer provided, personal, stakeholder, or any other scheme? |
|
EIPENN
|
|
How many pension funds did [^deceased ELSA respondent's name] have? |
|
EIPTYPE
|
|
What type of pension scheme was this [^first\second etc] scheme? |
|
EIEMP
|
|
What is the name of the employer provided scheme? INTERVIEWER:If police, local authority etc, probe for name of force/local authority etc. WRITE IN. |
|
EIPEN
|
|
When [^he/she] died, what happened to [^his/her] [^ pension type from EiPType]? ...READ OUT... CODE ALL THAT APPLY. |
|
EIPENO
|
|
INTERVIEWER:Enter details. |
|
EIPENWHO
|
|
Who is receiving or expects to receive payments? INTERVIEWER:Code one only. If respondent is son or daughter code 'Respondent', and not son/daughter. Only code 'Son' or 'Daughter' for those other than respondent. |
|
EIPENWR
|
|
INTERVIEWER:Please specify the other relative. |
|
EIPENWN
|
|
INTERVIEWER:Please specify the other non-relative. |
|
EIPENXPM
|
|
In what month and year do [^you/they] expect to start receiving these regular payments? INTERVIEWER:Enter month. |
|
EIPENXPY
|
|
INTERVIEWER:Enter year. |
|
EIPENXPA
|
|
How much do [^you/they] expect to receive per month? |
|
EIPENXPB
|
|
Is it...... BRACKETS (250, 500, 1000, 2500) |
|
EIPENXLM
|
|
In what month and year do [^you/they] expect to receive the lump sum? INTERVIEWER:Enter month. |
|
EIPENXLY
|
|
INTERVIEWER:Enter year. |
|
EIPENXLA
|
|
How much do [^you/they] expect the lump sum to amount to? |
|
EIPENXLB
|
|
Is it...... BRACKETS (5000, 10000, 50000, 100000) |
|
EIPENPD
|
|
Thinking about the last regular payment [^you/they] received, what period did this cover? |
|
EIPENPA
|
|
How much did [^you/they] receive? |
|
EIPENPW
|
|
Was it...... BRACKETS (50, 100, 250, 500) |
|
EIPENPM
|
|
Was it...... BRACKETS (250, 500, 1000, 2500) |
|
EIPENPO
|
|
Was it...... BRACKETS (250, 500, 1000, 2500) |
|
EIPENLA
|
|
Thinking about the lump sum payment [^you/they] received, how much was this? |
|
EIPENLB
|
|
Was it...... BRACKETS (5000, 10000, 50000, 100000) |
|
EIASSINT
|
|
I would now like to ask you some questions about what happened to [^deceased ELSA respondent's name]'s assets after [^his/her] death. |
|
EIASCK
|
|
Can I just check, has [^deceased ELSA respondent's name]'s estate been distributed yet?" |
|
EIWILLA
|
|
Did [^deceased ELSA respondent's name] have a Will? |
|
EIKIN
|
|
Who was [^deceased ELSA respondent's name]'s next of kin? INTERVIEWER:Code one only. If respondent is son or daughter code 'Respondent', and not son/daughter. Only code 'Son' or 'Daughter' for those other than respondent. |
|
EIKINO
|
|
INTERVIEWER:The respondent has answered 'other' relationship:Write in relationship to [^deceased ELSA respondent's name]. |
|
EIEXEC
|
|
Are you the legal executor of the Will? |
|
EIBEN
|
|
Are you a beneficiary of the Will? |
|
EIPROB
|
|
Did/Does [^deceased ELSA respondent's name]'s Will need to go to probate? |
|
EIWILLB
|
|
Has [^his/her] Will been through probate? |
|
EIWILLPRO
|
|
What is the total value of [^deceased ELSA respondent's name]'s assets? |
|
EIHOME
|
|
Did [^deceased ELSA respondent's name] own [^his/her] main home or share of [^his/her] main home when [^he/she] died? By main home I mean the place where [^he/she] lived most of the time (before they moved into an institution). INTERVIEWER:Other properties [^he/she] may have owned will be covered later. |
|
EIOSHARE
|
|
What share of the house did [^deceased ELSA respondent's name] own? |
|
EIOHMGAB
|
|
Was it...... BRACKETS (2500, 5000, 15000, 50000) [Bracket results are recorded in EioHbl, EioHbu, EioHbe, EioHbr] |
|
EIPRP
|
|
Did [^deceased ELSA respondent's name] own any property, or share of any property, other than their main home when [^he/she] died? (Exclude business property and other non-residential property, include holiday homes and timeshares.) |
|
EIPRPN
|
|
How many other properties did [^deceased ELSA respondent's name] own? |
|
EISP
|
|
Did [^you/ their spouse/partner inherit the [first] home or [^deceased ELSA respondent's name]'s share of the home? |
|
EISPOWN
|
|
[^Do you/ does their spouse/partner] currently own a share of the home? |
|
EISPSH
|
|
What share of the home [^do you/ does their spouse/partner] currently own? INTERVIEWER:Code how question will be answered |
|
EISPP
|
|
(What share of the home [^do you/does their spouse/partner] currently own?) INTERVIEWER:Give the answer as a percentage. |
|
EISPF
|
|
(What share of the home [^do you/does their spouse/partner] currently own?) INTERVIEWER:Give the answer as a fraction. |
|
EISPA
|
|
(What share of the home [^do you/does their spouse/partner] currently own?) INTERVIEWER:Give the answer as an amount. |
|
EISPINH
|
|
Did [^you/their spouse/partner] inherit the home (or [^deceased ELSA respondent's name]'s share of the home) solely or jointly with some other people? |
|
EISHP
|
|
(What share of the home did [^deceased ELSA respondent's name] own?) INTERVIEWER:Give the answer as a percentage. |
|
EISHF
|
|
(What share of the home did [^deceased ELSA respondent's name] own?) INTERVIEWER:Give the answer as a fraction. |
|
EISHA
|
|
(What share of the home did [^deceased ELSA respondent's name] own?) INTERVIEWER:Give the answer as an amount. |
|
EIHOWH
|
|
[^Who inherited this home/ deceased ELSA respondent's name's share] (that is, what is their relationship to [^deceased ELSA respondent's name])? CODE ALL THAT APPLY INTERVIEWER:Only code once for respondent. For example if respondent is son or daughter code 'Respondent', and not son or daughter. Only code 'Son' or 'Daughter' for those other than respondent. |
|
EIHOWOR
|
|
INTERVIEWER:Please specify the other relative. |
|
EIHOWON
|
|
INTERVIEWER:Please specify the other non-relative. |
|
EIHOWN
|
|
How many [^type of relative from EIHOWH] are you referring to? |
|
EIHOLIV
|
|
INTERVIEWER ASK OR CODE:Does this person live in this home at present? |
|
EIHOLV
|
|
Do any of these people currently live in that home? |
|
EIHOLW
|
|
Who lives in the house at present? CODE ALL THAT APPLY. |
|
EISPLIVE
|
|
INTERVIEWER ASK OR CODE:Does [^deceased ELSA respondent's name]'s spouse/partner live in that home at present? |
|
EIHOSLD
|
|
What has happened to that home? |
|
EIHOSOTH
|
|
INTERVIEWER:Record what has happened to the home. |
|
EIHOA
|
|
What [^is/was] the [^value/ selling price] of that home? |
|
EIHOAB
|
|
Was it...... BRACKETS (50000, 75000, 125000, 500000) [Bracket results are recorded in EiHool1, EiHoou1, EiHooe1, EiHoor1] |
|
EIHOMG
|
|
Was there any outstanding mortgage on this home (before any insurance might have paid the outstanding balance)? |
|
EIHOMGI
|
|
Did [^deceased ELSA respondent's name] have any insurance policies that will pay off or have paid off the mortgage either in full or partially? |
|
EIHOMGA
|
|
How much was the outstanding balance on this mortgage [mgtxt]? |
|
EIHOMGAB
|
|
Was it...... BRACKETS (2500, 5000, 15000, 50000) [Bracket results are recorded in EiHobol1, EiHobou1, EiHoboe1, EiHobor1] |
|
EIJOINT
|
|
[Loop:Responses to EIJOINT are recorded in variables EIJOINT 2 as maximum number of other properties was 1 so only one loop] Did [^deceased ELSA respondent's name] own this home jointly with someone else? |
|
EIOTHO
|
|
Who else owned the house with [^deceased ELSA respondent's name] when [^he/she] died? INTERVIEWER:CODE ALL THAT APPLY |
|
EIOTHN
|
|
How many [^types of relative from EIOTHO] are you referring to? |
|
EISHARE
|
|
What share of the house did [^deceased ELSA respondent's name] own? |
|
EIOSHP
|
|
(What share of the home did [^deceased ELSA respondent's name] own?) INTERVIEWER:Give the answer as a percentage. |
|
EIOSHF
|
|
(What share of the home did [^deceased ELSA respondent's name] own?) INTERVIEWER:Give the answer as a fraction. |
|
EIOSHA
|
|
(What share of the home did [^deceased ELSA respondent's name] own?) INTERVIEWER:Give the answer as an amount. |
|
EIOIN
|
|
Did only those with joint ownership inherit [^deceased ELSA respondent's name]'s share ofthe house? |
|
EIOINW
|
|
Who else inherited [^deceased ELSA respondent's name]'s share of the home? INTERVIEWER:DO NOT CODE JOINT OWNERS AGAIN |
|
EIOINN
|
|
How many [^type of relative from EIOINW] are you referring to? |
|
EIOHWH
|
|
Who inherited this home (that is, what is their relationship to [^deceased ELSA respondent's name]? CODE ALL THAT APPLY INTERVIEWER:Only code once for respondent. For example if respondent is son or daughter code 'Respondent', and not son or daughter. Only code 'Son' or 'Daughter' for those other than respondent. |
|
EIOHWN
|
|
How many [^type of relative from EioHwH] are you referring to? |
|
EIOHLIV
|
|
INTERVIEWER:ASK OR CODE:Does this person live in the home at present? |
|
EIOHLV
|
|
Do any of these people who now own the property currently live in that home? |
|
EIOHLW
|
|
Who lives in the house at present? CODE ALL THAT APPLY. |
|
EIOHSLD
|
|
What has happened to that home? |
|
EIOHSO
|
|
INTERVIEWER:Record what has happened to the home. |
|
EIOHA
|
|
What [^is/was] the [^value/selling price] of that home? |
|
EIOHAB
|
|
Was it...... BRACKETS (50000, 75000, 125000, 500000) [Bracket results are recorded in EioHl2, EioHu2, EioHe2, EioHr2] |
|
EIOHMG
|
|
Was there any outstanding mortgage on this home (before any insurance might have paid the outstanding balance)? |
|
EIOHMGI
|
|
Did [^deceased ELSA respondent's name] have any insurance policies that will pay off or have paid off the mortgage either in full or partially? |
|
EIOHMGA
|
|
How much was the outstanding balance on this mortgage [^after the insurance policy pay out]?[range:1..9999997] EioHMgab. Was it...... BRACKETS (2500, 5000, 15000, 50000) [Bracket results are recorded in EioHl2, EioHu2, EioHe2, EioHr2] |
|
EIPHY
|
|
Did [^deceased ELSA respondent's name] own a business or share in a business, including land or premises? |
|
EIPHYA
|
|
In total, how much were these business assets worth (after any debts had been paid off on them)? |
|
EIPHYAB
|
|
Was it...... BRACKETS (10000, 50000, 150000, 500000) [Bracket results are recorded in EIphl, EIphu, EIphe, EIphr] |
|
EIPHYWH
|
|
Who inherited these business assets? CODE ALL THAT APPLY. INTERVIEWER:Only code once for respondent. For example if respondent is son or daughter code 'Respondent', and not son or daughter. Only code 'Son' or 'Daughter' for those other than respondent. |
|
EIPHYWR
|
|
INTERVIEWER:Please specify the other relative(s). |
|
EIPHYWN
|
|
INTERVIEWER:Please specify the other non-relative(s). |
|
EIPHYRES
|
|
In total, how much did you inherit from these business assets? |
|
EIINHSPS
|
|
In total, how much did the husband/wife inherit from these business assets? |
|
EIINHPRT
|
|
In total, how much did the partner/cohabitee inherit from these business assets? |
|
EIOTHAS
|
|
Excluding any housing, pensions, or businesses [^deceased ELSA respondent's name] had, who inherited the rest of [^his/her] assets? CODE ALL THAT APPLY. INTERVIEWER:Only code once for respondent. For example if respondent is son or daughter code 'Respondent', and not son or daughter. Only code 'Son' or 'Daughter' for those other than respondent. |
|
EIOTHWR
|
|
INTERVIEWER:Please specify the other relative(s). |
|
EIOTHWN
|
|
INTERVIEWER:Please specify the other non-relative(s). |
|
EIOTHRES
|
|
In total, how much did you inherit from the rest of [^his/her] assets? |
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EIOTHSPS
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In total, how much did the husband/wife inherit from the rest of [^his/her] assets? |
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EIOTHPRT
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In total, how much did the partner/cohabitee inherit from the rest of [^his/her] assets? |
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EINUMREL
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How many [^type of relative from EIOTHAS] are you referring to? INTERVIEWER:If same relationship, do not include respondent here. |
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EIAMT
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[Loop:Responses to EIAMT are recorded in variables EIAMT401 to EIAMT800] In total, how much did the [^first\second etc] [^type of relative from EIOTHAS] inherit [^from these]? INTERVIEWER:Enter amount in pounds. |
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EIAMPROB
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Excluding any housing, pensions, or businesses [^deceased ELSA respondent's name] had, what was the total value of these other assets? |
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EILI
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Did [^deceased ELSA respondent's name] have any life insurance policies which paid out on [^his/her] death? |
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EILIWH
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Who were the beneficiaries of the life insurance polices? CODE ALL THAT APPLY. INTERVIEWER:Only code once for respondent. For example if respondent is son or daughter code 'Respondent', and not son or daughter. Only code 'Son' or 'Daughter' for those other than respondent. |
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EILIWR
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INTERVIEWER:Please specify the other relative(s). |
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EILIWN
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INTERVIEWER:Please specify the other non-relative(s). |
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EILIA
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How much in total was the pay out from the life insurance? |
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EILIB
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How much did [^you\the type of relative] receive from these life insurance policies. |
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EILIAB
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Was it...... BRACKETS (2000, 10000, 50000, 300000) [Bracket results are recorded in EiLIl1-24, EiLIu1-24, EiLIe1-24, EiLIr1-24] |
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EIENDA
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We have asked you many questions about numerous aspects of [^deceased ELSA respondent's name]'s health and finances, and we want to thank you very much for your assistance with them. Is there anything else you would like to add about [^deceased ELSA respondent's name] in [^his/her] last year of life? INTERVIEWER:If nothing to say, type None and press END. |