XT. End-of-Life Interview

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This module is answered by proxy collecting information about respondent who deceased between last wave and current wave. Information collected includes date of death, location of death, cause of death, final length of illness, medical care utilization before death, medical care costs, deceased's home, estate and who inherited them.

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Start of XT. End-of-Life Interview

XT006 Proxy respondent's sex view item details » IWER:CODE PROXY RESPONDENT'S SEX. 1. Male 2. Female

XT002 Relationship to the deceased view item details » BEFORE WE START ASKING QUESTIONS ABOUT THE LAST YEAR OF LIFE OF [{NAME OF DECEASED}], WOULD YOU PLEASE TELL ME WHAT WAS YOUR RELATIONSHIP TO THE DECEASED? 1. Husband or wife or partner 2. Son or Daughter 3. Son- or Daughter-in-law 4. Son or Daughter of husband, wife or partner 5. Grandchild 6. Sibling 7. Other relative (specify) 8. Other non-relative (specify)

If Relationship to the deceased view item details » = 7 »

	XT003

XT005 How often contact last twelve months view item details » DURING THE LAST TWELVE MONTHS OF [HIS/HER] LIFE, HOW OFTEN DID YOU HAVE CONTACT WITH [{NAME OF DECEASED}], EITHER PERSONALLY, BY PHONE, MAIL OR EMAIL? 1. Daily 2. Several times a week 3. About once a week 4. About every two weeks 5. About once a month 6. Less than once a month 7. Never

XT007 Year of birth proxy view item details » CAN YOU TELL ME YOUR YEAR OF BIRTH? 1900..1990

XT101 Confirmation deceased year of birth view item details » LET US NOW TALK ABOUT THE DECEASED. JUST TO MAKE SURE THAT WE HAVE THE CORRECT INFORMATION ABOUT [HIM/HER], CAN I JUST CONFIRM THAT [HE/SHE] WAS BORN IN [{MONTH OF BIRTH DECEASED} {YEAR OF BIRTH DECEASED }]? 1. Yes 5. No

If Confirmation deceased year of birth view item details » = 5 »

	XT102 Deceased month of birth view item details » IN WHICH MONTH AND YEAR WAS [{NAME OF DECEASED}] BORN? MONTH: IWER:MONTH 1. January 2. February 3. March 4. April 5. May 6. June 7. July 8. August 9. September 10. October 11. November 12. December

	XT103 Deceased year of birth view item details » IN WHICH MONTH AND YEAR WERE [{NAME OF DECEASED}] BORN?

XT008 Month of decease view item details » WE WOULD LIKE TO KNOW MORE ABOUT THE CIRCUMSTANCES OF [{NAME OF THE DECEASED}]. IN WHAT MONTH AND YEAR DID [HE/SHE] PASS AWAY?MONTH: YEAR: IWER:MONTH 1. January 2. February 3. March 4. April 5. May 6. June 7. July 8. August 9. September 10. October 11. November 12. December

XT009 Year of decease view item details » IN WHAT MONTH AND YEAR DID [HE/SHE] PASS AWAY?MONTH: [{MONTH OF DEATH}] YEAR: IWER:YEAR 1. 2004 2. 2005 3. 2006 4. 2007 5. 2008 6. 2009

XT010 Age at the moment of decease view item details » HOW OLD WAS [{NAME OF DECEASED}] WHEN [HE/SHE] PASSED AWAY? IWER:AGE IN YEARS 20..120

XT109 Deceased married at time of death view item details » WAS [{NAME OF THE DECEASED}] MARRIED AT THE TIME OF [HIS/HER] DEATH? 1. Yes 5. No

XT039 Number of children the deceased had at the end view item details » HOW MANY CHILDREN DID [{NAME OF DECEASED}] HAVE THAT WERE STILL ALIVE AT THE TIME OF [HIS/HER] DEATH? PLEASE INCLUDE ADOPTED CHILDREN.

XT011 The main cause of death view item details » WHAT WAS THE MAIN CAUSE OF [HIS/HER] DEATH? IWER:READ OUT IF NECESSARY 1. Cancer 2. A heart attack 3. A stroke 4. Other cardiovascular related illness such as heart failure, arrhythmia 5. Respiratory disease 6. Disease of the digestive system such as gastrointestinal ulcer, inflammatory bowel disease 7. Severe infectious disease such as pneumonia, septicemia or flu 8. Accident 97. Other (Please specify)

If The main cause of death view item details » != 8 »

	XT013 How long been ill before decease view item details » HOW LONG HAD [{NAME OF DECEASED}] BEEN ILL BEFORE [HE/SHE] DIED? IWER:READ OUT 1. Less than one month 2. One month or more but less than 6 months 3. 6 months or more but less than a year 4. One year or more

	XT014 Place of dying view item details » DID [HE/SHE] DIE ... IWER:READ OUT 1. at [his/her] own home 2. at another person's home 3. in a hospital 4. in a nursing home 5. in a residential home or sheltered housing 6. in a hospice 97. at some other place (Please specify)

	XT015 Times in hospital last year before dying view item details » IN THE LAST YEAR BEFORE [HE/SHE] DIED, ON HOW MANY DIFFERENT OCCASIONS DID [{NAME OF DECEASED}] STAY IN A HOSPITAL, HOSPICE OR NURSING HOME? IWER:DO NOT READ OUT 1. Not at all 2. 1 to 2 times 3. 3 to 5 times 4. More than 5 times

	If Times in hospital last year before dying view item details » > 1. Not at all 2. 1 to 2 times 3. 3 to 5 times 4. More than 5 times »

		XT016 Total time in hospital last year before dying view item details » DURING THE LAST YEAR OF [HIS/HER] LIFE, FOR HOW LONG ALTOGETHER DID [{NAME OF DECEASED}] STAY AT HOSPITALS, HOSPICES OR NURSING HOMES? IWER:DO NOT READ OUT 1. Less than one week 2. One week or more but less than one month 3. One month or more but less than 3 months 4. 3 months or more but less than 6 months 5. 6 months or more but less than a year 6. A full year

As CNT:= 1 to 8 »

	If CNT < 3 or CNT > 5 or Times in hospital last year before dying view item details » != 1. Not at all 2. 1 to 2 times 3. 3 to 5 times 4. More than 5 times »

		XT018 Had type of medical care in the last twelve months view item details » HAS [{NAME OF DECEASED}] HAD ANY [CARE FROM A GENERAL PRACTITIONER/CARE FROM SPECIALIST PHYSICIANS/HOSPITAL STAYS/CARE IN A NURSING HOME/HOSPICE STAYS/MEDICATION/AIDS AND APPLIANCES/HOME CARE OR HOME HELP DUE TO DISABILITY] (IN THE LAST 12 MONTHS OF [HIS/HER] LIFE)? 1. Yes 5. No

		If Had type of medical care in the last twelve months view item details » = 1. Yes 5. No »

			XT019 Costs of type of medical care in the last twelve months view item details » ABOUT HOW MUCH DID [HIS/HER] [CARE FROM A GENERAL PRACTITIONER/CARE FROM SPECIALIST PHYSICIANS/HOSPITAL STAYS/CARE IN A NURSING HOME/HOSPICE STAYS/MEDICATION/AIDS AND APPLIANCES/HOME CARE OR HOME HELP DUE TO DISABILITY] COST (IN THE LAST 12 MONTHS OF [HIS/HER] LIFE)? IWER:IF A TYPE OF CARE WAS RECEIVED AND ALL COSTS WERE PAID OR REIMBURSED BY THE HEALTH INSURANCE, FILL IN "0" AS AMOUNT INCURRED; ENTER AMOUNT IN [POUNDS] 0..980000

XT105 Difficulties remembering where view item details » WE WOULD LIKE TO KNOW MORE ABOUT THE DIFFICULTIES PEOPLE HAVE IN THEIR LAST YEAR OF LIFE BECAUSE OF A PHYSICAL, MENTAL, EMOTIONAL OR MEMORY PROBLEMS. DURING THE LAST YEAR OF [HIS/HER] LIFE, DID [{NAME OF THE DECEASED}] HAVE ANY DIFFICULTY REMEMBERING WHERE [HE/SHE] WAS? PLEASE NAME ONLY DIFFICULTIES THAT LASTED AT LEAST THREE MONTHS. 1. Yes 5. No

XT106 Difficulties remembering the year view item details » DURING THE LAST YEAR OF [HIS/HER] LIFE, DID [{NAME OF THE DECEASED}] HAVE ANY DIFFICULTY REMEMBERINGWHAT YEAR IT WAS? PLEASE NAME ONLY DIFFICULTIES THAT LASTED AT LEAST THREE MONTHS. 1. Yes 5. No

XT107 Difficulties recognizing view item details » DURING THE LAST YEAR OF [HIS/HER] LIFE, DID [{NAME OF THE DECEASED}] HAVE ANY DIFFICULTY RECOGNIZINGFAMILY MEMBERS OR GOOD FRIENDS? PLEASE NAME ONLY DIFFICULTIES THAT LASTED AT LEAST THREE MONTHS. 1. Yes 5. No

If Introduction difficulties doing activities view item details » > 0 and Introduction difficulties doing activities view item details » != 96 »

	XT022 Anyone helped with adl view item details » THINKING ABOUT THE ACTIVITIES THAT THE DECEASED HAD PROBLEMS WITH DURING THE LAST TWELVE MONTHS OF [HIS/HER] LIFE, HAS ANYONE HELPED REGULARLY WITH THESE ACTIVITIES? 1. Yes 5. No

	If Anyone helped with adl view item details » = 1. Yes 5. No »

		XT023 Who has helped with adl view item details » WHO, INCLUDING YOURSELF, HAS HELPED MAINLY WITH THESE ACTIVITIES? PLEASE NAME AT MOST THREE PERSONS. IWER:DO NOT READ OUTAT MOST THREE ANSWERS!CODE RELATIONSHIP TO DECEASED! 1. Yourself (proxy respondent) 2. Husband or wife or partner of the deceased 3. Mother or father of the deceased 4. Son of the deceased 5. Son-in-law of the deceased 6. Daughter of the deceased 7. Daughter-in-law of the deceased 8. Grandson of the deceased 9. Granddaughter of the deceased 10. Sister of the deceased 11. Brother of the deceased 12. Other relative 13. Unpaid volunteer 14. Professional helper (e.g. nurse) 15. Friend or neighbor of the deceased 16. Other person

		XT024 Time the deceased received help view item details » OVERALL, DURING THE LAST TWELVE MONTHS OF [HIS/HER] LIFE, FOR HOW LONG DID THE DECEASED RECEIVE HELP? IWER:READ OUT 1. Less than one month 2. One month or more but less than 3 months 3. 3 months or more but less than 6 months 4. 6 months or more but less than a year 5. A full year

		XT025 Hours of help necessary during typical day view item details » AND ABOUT HOW MANY HOURS OF HELP WERE NECESSARY DURING A TYPICAL DAY? 0..24

XT026B The deceased had a will view item details » SOME PEOPLE MAKE A WILL TO DETERMINE WHO RECEIVES WHAT PARTS OF THE ESTATE.DID [{NAME OF THE DECEASED}] HAVE A WILL? 1. Yes 5. No

XT027 The beneficiaries of the estate view item details » WHO WERE THE BENEFICIARIES OF THE ESTATE, INCLUDING YOURSELF? IWER:READ OUTCODE ALL THAT APPLY 1. Yourself (proxy) 2. Husband or wife or partner of the deceased 3. Children of the deceased 4. Grandchildren of the deceased 5. Siblings of the deceased 6. Other relatives (specify) of the deceased 7. Other non-relatives (specify) 8. Church, foundation or charitable organization 9. Deceased did not leave anything at all (SPONTANEOUS)

XT030 The deceased owned home view item details » DID THE DECEASED OWN [HIS/HER] HOME OR APARTMENT - EITHER IN TOTAL OR A SHARE OF IT? 1. Yes 5. No

If The deceased owned home view item details » = 1. Yes 5. No »

	XT031 Value home after mortgages view item details » AFTER ANY OUTSTANDING MORTGAGES, WHAT WAS THE VALUE OF THE HOME OR APARTMENT OR THE SHARE OF IT OWNED BY THE DECEASED? IWER:ENTER AN AMOUNT IN [POUNDS]. -50000000..50000000

	XT032 Who inherited the home of the deceased view item details » WHO INHERITED THE DECEASED'S HOME OR APARTMENT, INCLUDING YOURSELF? IWER:CODE RELATIONSHIP TO DECEASED, ALL THAT APPLY 1. Yourself (proxy respondent) 2. Husband or wife or partner 3. Sons or daughters (ASK FOR FIRST NAMES) 4. Grandchildren 5. Siblings 6. Other relatives (specify) 7. Other non-relatives (specify)

XT033 The deceased owned any life insurance policies view item details » DID THE DECEASED OWN ANY LIFE INSURANCE POLICIES? 1. Yes 5. No

If The deceased owned any life insurance policies view item details » = 1. Yes 5. No »

	XT034 Value of all life insurance policies view item details » IN TOTAL, ABOUT WHAT WAS THE VALUE OF ALL LIFE INSURANCE POLICIES OWNED BY THE DECEASED? IWER:ENTER AN AMOUNT IN [POUNDS] 0..50000000

	XT035 Beneficiaries of the life insurance policies view item details » WHO WERE THE BENEFICIARIES OF THE LIFE INSURANCE POLICES, INCLUDING YOURSELF. IWER:CODE RELATIONSHIP TO DECEASED, ALL THAT APPLY. 1. Yourself (proxy respondent) 2. Husband or wife or partner 3. Sons or daughters (ASK FOR FIRST NAMES) 4. Grandchildren 5. Siblings 6. Other relatives (specify) 7. Other non-relatives (specify)

As CNT:= 1 to 5 »

	XT037 The deceased owned type of assets view item details » DID [HE/SHE] OWN ANY [BUSINESSES, INCLUDING LAND OR PREMISES/OTHER REAL ESTATE/CARS/FINANCIAL ASSETS, E.G. CASH, MONEY OR STOCKS/JEWELRY OR ANTIQUITIES]? 1. Yes 5. No

	If The deceased owned type of assets view item details » = 1. Yes 5. No »

		XT038 Value type of assets view item details » ABOUT WHAT WAS THE VALUE OF THE [BUSINESSES, INCLUDING LAND OR PREMISES/OTHER REAL ESTATE/CARS/FINANCIAL ASSETS, E.G. CASH, MONEY OR STOCKS/JEWELRY OR ANTIQUITIES] OWNED BY [{NAME OF DECEASED}] AT THE TIME OF [HIS/HER] DEATH? IWER:ENTER AN AMOUNT IN [POUNDS] -50000000..50000000

If Number of children the deceased had at the end view item details » > 1 and The beneficiaries of the estate view item details » != 9 »

	XT040A Total estate divided among the children view item details » HOW WOULD YOU SAY WAS THE TOTAL ESTATE DIVIDED AMONG THE DECEASED'S CHILDREN? IWER:PLEASE READ OUT 1. Some children received more than others 2. The estate was divided about equally among all children 3. The estate was distributed exactly [m]equally[/m] among the children 4. The children have not received anything received more than others

	If Total estate divided among the children view item details » = 1. Some children received more than others 2. The estate was divided about equally among all children 3. The estate was distributed exactly [m]equally[/m] among the children 4. The children have not received anything received more than others »

		XT040B Some children received more for caring view item details » WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS TO MAKE UP FOR PREVIOUS GIFTS? 1. Yes 5. No

		XT040C Some children received more to give them financial view item details » SUPPORT WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS TO GIVE THEM FINANCIAL SUPPORT? 1. Yes 5. No

		XT040D Some children received more for caring view item details » WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS BECAUSE THEY HELPED OR CARED FOR THE DECEASED TOWARDS THE END OF [HIS/HER] LIFE? 1. Yes 5. No

		XT040E Some children received more for other reasons view item details » WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS BECAUSE OF OTHER REASONS? 1. Yes 5. No

XT041 The funeral was accompanied by a religious ceremony view item details » FINALLY, WE WOULD LIKE TO KNOW ABOUT THE DECEASED'S FUNERAL. WAS THE FUNERAL ACCOMPANIED BY A RELIGIOUS CEREMONY? 1. Yes 5. No

End of XT. End-of-Life Interview

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XT. End-of-Life Interview