XT. End-of-Life Interview

This module is answered by proxy collecting information about respondent who deceased between last wave and current wave. Information collected includes date of death, location of death, cause of death, final length of illness, medical care utilization before death, medical care costs, deceased's home, estate and who inherited them.

item label type description
MERGEID System generated Person identifier (fix across modules and waves)
HHID3 System generated Household identifier wave 3
COUNTRY System generated Country identifier
WAVEID System generated Identifier of original wave
SPLIT System generated Household split identifier
LANGUAGE System generated Language of questionnaire
XT006 Question asked of interviewer Proxy respondent's sex
XT002 Question Relationship to the deceased
XT005 Question How often contact last twelve months
XT007 Question Year of birth proxy
XT101 Question Confirmation deceased year of birth
XT102 Question Deceased month of birth
XT103 Question Deceased year of birth
XT104 Question asked of interviewer Sex of decendent
XT008 Question Month of decease
XT009 Question Year of decease
XT010 Question Age at the moment of decease
XT109 Question Deceased married at time of death
XT039 Question Number of children the deceased had at the end
XT011 Question The main cause of death
XT013 Question How long been ill before decease
XT014 Question Place of dying
XT015 Question Times in hospital last year before dying
XT016 Question Total time in hospital last year before dying
XT018 Question Had type of medical care in the last twelve months
XT019 Question Costs of type of medical care in the last twelve months
XT105 Question Difficulties remembering where
XT106 Question Difficulties remembering the year
XT107 Question Difficulties recognizing
XT020 Question Introduction difficulties doing activities
XT022 Question Anyone helped with adl
XT023 Question Who has helped with adl
XT024 Question Time the deceased received help
XT025 Question Hours of help necessary during typical day
XT026B Question The deceased had a will
XT027 Question The beneficiaries of the estate
XT030 Question The deceased owned home
XT031 Question Value home after mortgages
XT032 Question Who inherited the home of the deceased
XT033 Question The deceased owned any life insurance policies
XT034 Question Value of all life insurance policies
XT035 Question Beneficiaries of the life insurance policies
XT037 Question The deceased owned type of assets
XT038 Question Value type of assets
XT040A Question Total estate divided among the children
XT040B Question Some children received more for caring
XT040C Question Some children received more to give them financial
XT040D Question Some children received more for caring
XT040E Question Some children received more for other reasons
XT041 Question The funeral was accompanied by a religious ceremony
XT043 Question asked of interviewer Interview mode
Start of XT. End-of-Life Interview
 
XT006

Proxy respondent's sex

IWER:CODE PROXY RESPONDENT'S SEX.
expand
 
XT002

Relationship to the deceased

BEFORE WE START ASKING QUESTIONS ABOUT THE LAST YEAR OF LIFE OF [{NAME OF DECEASED}], WOULD YOU PLEASE TELL ME WHAT WAS YOUR RELATIONSHIP TO THE DECEASED?
expand
 
If Relationship to the deceased = 7 »
 
   
 
XT003
   
XT005

How often contact last twelve months

DURING THE LAST TWELVE MONTHS OF [HIS/HER] LIFE, HOW OFTEN DID YOU HAVE CONTACT WITH [{NAME OF DECEASED}], EITHER PERSONALLY, BY PHONE, MAIL OR EMAIL?
expand
 
XT007

Year of birth proxy

CAN YOU TELL ME YOUR YEAR OF BIRTH?
expand
 
XT101

Confirmation deceased year of birth

LET US NOW TALK ABOUT THE DECEASED. JUST TO MAKE SURE THAT WE HAVE THE CORRECT INFORMATION ABOUT [HIM/HER], CAN I JUST CONFIRM THAT [HE/SHE] WAS BORN IN [{MONTH OF BIRTH DECEASED} {YEAR OF BIRTH DECEASED }]?
expand
 
If Confirmation deceased year of birth = 5 »
 
   
 
XT102

Deceased month of birth

IN WHICH MONTH AND YEAR WAS [{NAME OF DECEASED}] BORN? MONTH: IWER:MONTH
expand
   
 
XT103

Deceased year of birth

IN WHICH MONTH AND YEAR WERE [{NAME OF DECEASED}] BORN?
   
XT008

Month of decease

WE WOULD LIKE TO KNOW MORE ABOUT THE CIRCUMSTANCES OF [{NAME OF THE DECEASED}]. IN WHAT MONTH AND YEAR DID [HE/SHE] PASS AWAY?MONTH: YEAR: IWER:MONTH
expand
 
XT009

Year of decease

IN WHAT MONTH AND YEAR DID [HE/SHE] PASS AWAY?MONTH: [{MONTH OF DEATH}] YEAR: IWER:YEAR
expand
 
XT010

Age at the moment of decease

HOW OLD WAS [{NAME OF DECEASED}] WHEN [HE/SHE] PASSED AWAY? IWER:AGE IN YEARS
expand
 
XT109

Deceased married at time of death

WAS [{NAME OF THE DECEASED}] MARRIED AT THE TIME OF [HIS/HER] DEATH?
expand
 
XT039

Number of children the deceased had at the end

HOW MANY CHILDREN DID [{NAME OF DECEASED}] HAVE THAT WERE STILL ALIVE AT THE TIME OF [HIS/HER] DEATH? PLEASE INCLUDE ADOPTED CHILDREN.
 
XT011

The main cause of death

WHAT WAS THE MAIN CAUSE OF [HIS/HER] DEATH? IWER:READ OUT IF NECESSARY
expand
 
If The main cause of death != 8 »
 
   
 
XT013

How long been ill before decease

HOW LONG HAD [{NAME OF DECEASED}] BEEN ILL BEFORE [HE/SHE] DIED? IWER:READ OUT
expand
   
 
XT014

Place of dying

DID [HE/SHE] DIE ... IWER:READ OUT
expand
   
 
XT015

Times in hospital last year before dying

IN THE LAST YEAR BEFORE [HE/SHE] DIED, ON HOW MANY DIFFERENT OCCASIONS DID [{NAME OF DECEASED}] STAY IN A HOSPITAL, HOSPICE OR NURSING HOME? IWER:DO NOT READ OUT
expand
   
 
If Times in hospital last year before dying > 1. Not at all
2. 1 to 2 times
3. 3 to 5 times
4. More than 5 times »
 
     
   
XT016

Total time in hospital last year before dying

DURING THE LAST YEAR OF [HIS/HER] LIFE, FOR HOW LONG ALTOGETHER DID [{NAME OF DECEASED}] STAY AT HOSPITALS, HOSPICES OR NURSING HOMES? IWER:DO NOT READ OUT
expand
     
As CNT:= 1 to 8  »
 
   
 
If CNT < 3 or CNT > 5 or Times in hospital last year before dying != 1. Not at all
2. 1 to 2 times
3. 3 to 5 times
4. More than 5 times »
 
     
   
XT018

Had type of medical care in the last twelve months

HAS [{NAME OF DECEASED}] HAD ANY [CARE FROM A GENERAL PRACTITIONER/CARE FROM SPECIALIST PHYSICIANS/HOSPITAL STAYS/CARE IN A NURSING HOME/HOSPICE STAYS/MEDICATION/AIDS AND APPLIANCES/HOME CARE OR HOME HELP DUE TO DISABILITY] (IN THE LAST 12 MONTHS OF [HIS/HER] LIFE)?
expand
     
   
If Had type of medical care in the last twelve months = 1. Yes
5. No »
 
       
     
XT019

Costs of type of medical care in the last twelve months

ABOUT HOW MUCH DID [HIS/HER] [CARE FROM A GENERAL PRACTITIONER/CARE FROM SPECIALIST PHYSICIANS/HOSPITAL STAYS/CARE IN A NURSING HOME/HOSPICE STAYS/MEDICATION/AIDS AND APPLIANCES/HOME CARE OR HOME HELP DUE TO DISABILITY] COST (IN THE LAST 12 MONTHS OF [HIS/HER] LIFE)? IWER:IF A TYPE OF CARE WAS RECEIVED AND ALL COSTS WERE PAID OR REIMBURSED BY THE HEALTH INSURANCE, FILL IN "0" AS AMOUNT INCURRED; ENTER AMOUNT IN [POUNDS]
expand
       
XT105

Difficulties remembering where

WE WOULD LIKE TO KNOW MORE ABOUT THE DIFFICULTIES PEOPLE HAVE IN THEIR LAST YEAR OF LIFE BECAUSE OF A PHYSICAL, MENTAL, EMOTIONAL OR MEMORY PROBLEMS. DURING THE LAST YEAR OF [HIS/HER] LIFE, DID [{NAME OF THE DECEASED}] HAVE ANY DIFFICULTY REMEMBERING WHERE [HE/SHE] WAS? PLEASE NAME ONLY DIFFICULTIES THAT LASTED AT LEAST THREE MONTHS.
expand
 
XT106

Difficulties remembering the year

DURING THE LAST YEAR OF [HIS/HER] LIFE, DID [{NAME OF THE DECEASED}] HAVE ANY DIFFICULTY REMEMBERINGWHAT YEAR IT WAS? PLEASE NAME ONLY DIFFICULTIES THAT LASTED AT LEAST THREE MONTHS.
expand
 
XT107

Difficulties recognizing

DURING THE LAST YEAR OF [HIS/HER] LIFE, DID [{NAME OF THE DECEASED}] HAVE ANY DIFFICULTY RECOGNIZINGFAMILY MEMBERS OR GOOD FRIENDS? PLEASE NAME ONLY DIFFICULTIES THAT LASTED AT LEAST THREE MONTHS.
expand
 
If Introduction difficulties doing activities > 0 and Introduction difficulties doing activities != 96 »
 
   
 
XT022

Anyone helped with adl

THINKING ABOUT THE ACTIVITIES THAT THE DECEASED HAD PROBLEMS WITH DURING THE LAST TWELVE MONTHS OF [HIS/HER] LIFE, HAS ANYONE HELPED REGULARLY WITH THESE ACTIVITIES?
expand
   
 
If Anyone helped with adl = 1. Yes
5. No »
 
     
   
XT023

Who has helped with adl

WHO, INCLUDING YOURSELF, HAS HELPED MAINLY WITH THESE ACTIVITIES? PLEASE NAME AT MOST THREE PERSONS. IWER:DO NOT READ OUTAT MOST THREE ANSWERS!CODE RELATIONSHIP TO DECEASED!
expand
     
   
XT024

Time the deceased received help

OVERALL, DURING THE LAST TWELVE MONTHS OF [HIS/HER] LIFE, FOR HOW LONG DID THE DECEASED RECEIVE HELP? IWER:READ OUT
expand
     
   
XT025

Hours of help necessary during typical day

AND ABOUT HOW MANY HOURS OF HELP WERE NECESSARY DURING A TYPICAL DAY?
expand
     
XT026B

The deceased had a will

SOME PEOPLE MAKE A WILL TO DETERMINE WHO RECEIVES WHAT PARTS OF THE ESTATE.DID [{NAME OF THE DECEASED}] HAVE A WILL?
expand
 
XT027

The beneficiaries of the estate

WHO WERE THE BENEFICIARIES OF THE ESTATE, INCLUDING YOURSELF? IWER:READ OUTCODE ALL THAT APPLY
expand
 
XT030

The deceased owned home

DID THE DECEASED OWN [HIS/HER] HOME OR APARTMENT - EITHER IN TOTAL OR A SHARE OF IT?
expand
 
If The deceased owned home = 1. Yes
5. No »
 
   
 
XT031

Value home after mortgages

AFTER ANY OUTSTANDING MORTGAGES, WHAT WAS THE VALUE OF THE HOME OR APARTMENT OR THE SHARE OF IT OWNED BY THE DECEASED? IWER:ENTER AN AMOUNT IN [POUNDS].
expand
   
 
XT032

Who inherited the home of the deceased

WHO INHERITED THE DECEASED'S HOME OR APARTMENT, INCLUDING YOURSELF? IWER:CODE RELATIONSHIP TO DECEASED, ALL THAT APPLY
expand
   
XT033

The deceased owned any life insurance policies

DID THE DECEASED OWN ANY LIFE INSURANCE POLICIES?
expand
 
If The deceased owned any life insurance policies = 1. Yes
5. No »
 
   
 
XT034

Value of all life insurance policies

IN TOTAL, ABOUT WHAT WAS THE VALUE OF ALL LIFE INSURANCE POLICIES OWNED BY THE DECEASED? IWER:ENTER AN AMOUNT IN [POUNDS]
expand
   
 
XT035

Beneficiaries of the life insurance policies

WHO WERE THE BENEFICIARIES OF THE LIFE INSURANCE POLICES, INCLUDING YOURSELF. IWER:CODE RELATIONSHIP TO DECEASED, ALL THAT APPLY.
expand
   
As CNT:= 1 to 5  »
 
   
 
XT037

The deceased owned type of assets

DID [HE/SHE] OWN ANY [BUSINESSES, INCLUDING LAND OR PREMISES/OTHER REAL ESTATE/CARS/FINANCIAL ASSETS, E.G. CASH, MONEY OR STOCKS/JEWELRY OR ANTIQUITIES]?
expand
   
 
If The deceased owned type of assets = 1. Yes
5. No »
 
     
   
XT038

Value type of assets

ABOUT WHAT WAS THE VALUE OF THE [BUSINESSES, INCLUDING LAND OR PREMISES/OTHER REAL ESTATE/CARS/FINANCIAL ASSETS, E.G. CASH, MONEY OR STOCKS/JEWELRY OR ANTIQUITIES] OWNED BY [{NAME OF DECEASED}] AT THE TIME OF [HIS/HER] DEATH? IWER:ENTER AN AMOUNT IN [POUNDS]
expand
     
If Number of children the deceased had at the end > 1 and The beneficiaries of the estate != 9 »
 
   
 
XT040A

Total estate divided among the children

HOW WOULD YOU SAY WAS THE TOTAL ESTATE DIVIDED AMONG THE DECEASED'S CHILDREN? IWER:PLEASE READ OUT
expand
   
 
If Total estate divided among the children = 1. Some children received more than others
2. The estate was divided about equally among all children
3. The estate was distributed exactly [m]equally[/m] among the children
4. The children have not received anything received more than others »
 
     
   
XT040B

Some children received more for caring

WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS TO MAKE UP FOR PREVIOUS GIFTS?
expand
     
   
XT040C

Some children received more to give them financial

SUPPORT WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS TO GIVE THEM FINANCIAL SUPPORT?
expand
     
   
XT040D

Some children received more for caring

WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS BECAUSE THEY HELPED OR CARED FOR THE DECEASED TOWARDS THE END OF [HIS/HER] LIFE?
expand
     
   
XT040E

Some children received more for other reasons

WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS BECAUSE OF OTHER REASONS?
expand
     
XT041

The funeral was accompanied by a religious ceremony

FINALLY, WE WOULD LIKE TO KNOW ABOUT THE DECEASED'S FUNERAL. WAS THE FUNERAL ACCOMPANIED BY A RELIGIOUS CEREMONY?
expand
 
End of XT. End-of-Life Interview
Start of XT. End-of-Life Interview

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XT006
Proxy respondent's sex

IWER:CODE PROXY RESPONDENT'S SEX.
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Male
2. Female

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XT002
Relationship to the deceased

BEFORE WE START ASKING QUESTIONS ABOUT THE LAST YEAR OF LIFE OF [{NAME OF DECEASED}], WOULD YOU PLEASE TELL ME WHAT WAS YOUR RELATIONSHIP TO THE DECEASED?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Husband or wife or partner
2. Son or Daughter
3. Son- or Daughter-in-law
4. Son or Daughter of husband, wife or partner
5. Grandchild
6. Sibling
7. Other relative (specify)
8. Other non-relative (specify)

If Relationship to the deceased (XT002) = 7 »

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XT003
XT003

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XT005
How often contact last twelve months

DURING THE LAST TWELVE MONTHS OF [HIS/HER] LIFE, HOW OFTEN DID YOU HAVE CONTACT WITH [{NAME OF DECEASED}], EITHER PERSONALLY, BY PHONE, MAIL OR EMAIL?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Daily
2. Several times a week
3. About once a week
4. About every two weeks
5. About once a month
6. Less than once a month
7. Never

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XT007
Year of birth proxy

CAN YOU TELL ME YOUR YEAR OF BIRTH?
- - - - - - - - - - - - - - - - - - - - - - - - -
1900..1990

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XT101
Confirmation deceased year of birth

LET US NOW TALK ABOUT THE DECEASED. JUST TO MAKE SURE THAT WE HAVE THE CORRECT INFORMATION ABOUT [HIM/HER], CAN I JUST CONFIRM THAT [HE/SHE] WAS BORN IN [{MONTH OF BIRTH DECEASED} {YEAR OF BIRTH DECEASED }]?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

If Confirmation deceased year of birth (XT101) = 5 »

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XT102
Deceased month of birth

IN WHICH MONTH AND YEAR WAS [{NAME OF DECEASED}] BORN? MONTH: IWER:MONTH
- - - - - - - - - - - - - - - - - - - - - - - - -
1. January
2. February
3. March
4. April
5. May
6. June
7. July
8. August
9. September 10. October 11. November 12. December

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XT103
Deceased year of birth

IN WHICH MONTH AND YEAR WERE [{NAME OF DECEASED}] BORN?

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XT008
Month of decease

WE WOULD LIKE TO KNOW MORE ABOUT THE CIRCUMSTANCES OF [{NAME OF THE DECEASED}]. IN WHAT MONTH AND YEAR DID [HE/SHE] PASS AWAY?MONTH: YEAR: IWER:MONTH
- - - - - - - - - - - - - - - - - - - - - - - - -
1. January
2. February
3. March
4. April
5. May
6. June
7. July
8. August
9. September 10. October 11. November 12. December

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XT009
Year of decease

IN WHAT MONTH AND YEAR DID [HE/SHE] PASS AWAY?MONTH: [{MONTH OF DEATH}] YEAR: IWER:YEAR
- - - - - - - - - - - - - - - - - - - - - - - - -
1. 2004
2. 2005
3. 2006
4. 2007
5. 2008
6. 2009

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XT010
Age at the moment of decease

HOW OLD WAS [{NAME OF DECEASED}] WHEN [HE/SHE] PASSED AWAY? IWER:AGE IN YEARS
- - - - - - - - - - - - - - - - - - - - - - - - -
20..120

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XT109
Deceased married at time of death

WAS [{NAME OF THE DECEASED}] MARRIED AT THE TIME OF [HIS/HER] DEATH?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

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XT039
Number of children the deceased had at the end

HOW MANY CHILDREN DID [{NAME OF DECEASED}] HAVE THAT WERE STILL ALIVE AT THE TIME OF [HIS/HER] DEATH? PLEASE INCLUDE ADOPTED CHILDREN.

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XT011
The main cause of death

WHAT WAS THE MAIN CAUSE OF [HIS/HER] DEATH? IWER:READ OUT IF NECESSARY
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Cancer
2. A heart attack
3. A stroke
4. Other cardiovascular related illness such as heart failure, arrhythmia
5. Respiratory disease
6. Disease of the digestive system such as gastrointestinal ulcer, inflammatory bowel disease
7. Severe infectious disease such as pneumonia, septicemia or flu
8. Accident 97. Other (Please specify)

If The main cause of death (XT011) != 8 »

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XT013
How long been ill before decease

HOW LONG HAD [{NAME OF DECEASED}] BEEN ILL BEFORE [HE/SHE] DIED? IWER:READ OUT
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Less than one month
2. One month or more but less than 6 months
3. 6 months or more but less than a year
4. One year or more

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XT014
Place of dying

DID [HE/SHE] DIE ... IWER:READ OUT
- - - - - - - - - - - - - - - - - - - - - - - - -
1. at [his/her] own home
2. at another person's home
3. in a hospital
4. in a nursing home
5. in a residential home or sheltered housing
6. in a hospice 97. at some other place (Please specify)

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XT015
Times in hospital last year before dying

IN THE LAST YEAR BEFORE [HE/SHE] DIED, ON HOW MANY DIFFERENT OCCASIONS DID [{NAME OF DECEASED}] STAY IN A HOSPITAL, HOSPICE OR NURSING HOME? IWER:DO NOT READ OUT
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Not at all
2. 1 to 2 times
3. 3 to 5 times
4. More than 5 times

If Times in hospital last year before dying (XT015) > 1. Not at all
2. 1 to 2 times
3. 3 to 5 times
4. More than 5 times »


| | ========================================================================
| | 
XT016
Total time in hospital last year before dying

DURING THE LAST YEAR OF [HIS/HER] LIFE, FOR HOW LONG ALTOGETHER DID [{NAME OF DECEASED}] STAY AT HOSPITALS, HOSPICES OR NURSING HOMES? IWER:DO NOT READ OUT
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Less than one week
2. One week or more but less than one month
3. One month or more but less than 3 months
4. 3 months or more but less than 6 months
5. 6 months or more but less than a year
6. A full year

As CNT:= 1 to 8  » »

If CNT < 3 or CNT > 5 or Times in hospital last year before dying (XT015) != 1. Not at all
2. 1 to 2 times
3. 3 to 5 times
4. More than 5 times »


| | ========================================================================
| | 
XT018
Had type of medical care in the last twelve months

HAS [{NAME OF DECEASED}] HAD ANY [CARE FROM A GENERAL PRACTITIONER/CARE FROM SPECIALIST PHYSICIANS/HOSPITAL STAYS/CARE IN A NURSING HOME/HOSPICE STAYS/MEDICATION/AIDS AND APPLIANCES/HOME CARE OR HOME HELP DUE TO DISABILITY] (IN THE LAST 12 MONTHS OF [HIS/HER] LIFE)?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

| | If Had type of medical care in the last twelve months (XT018) = 1. Yes
5. No »


| | | ========================================================================
| | | 
XT019
Costs of type of medical care in the last twelve months

ABOUT HOW MUCH DID [HIS/HER] [CARE FROM A GENERAL PRACTITIONER/CARE FROM SPECIALIST PHYSICIANS/HOSPITAL STAYS/CARE IN A NURSING HOME/HOSPICE STAYS/MEDICATION/AIDS AND APPLIANCES/HOME CARE OR HOME HELP DUE TO DISABILITY] COST (IN THE LAST 12 MONTHS OF [HIS/HER] LIFE)? IWER:IF A TYPE OF CARE WAS RECEIVED AND ALL COSTS WERE PAID OR REIMBURSED BY THE HEALTH INSURANCE, FILL IN "0" AS AMOUNT INCURRED; ENTER AMOUNT IN [POUNDS]
- - - - - - - - - - - - - - - - - - - - - - - - -
0..980000

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XT105
Difficulties remembering where

WE WOULD LIKE TO KNOW MORE ABOUT THE DIFFICULTIES PEOPLE HAVE IN THEIR LAST YEAR OF LIFE BECAUSE OF A PHYSICAL, MENTAL, EMOTIONAL OR MEMORY PROBLEMS. DURING THE LAST YEAR OF [HIS/HER] LIFE, DID [{NAME OF THE DECEASED}] HAVE ANY DIFFICULTY REMEMBERING WHERE [HE/SHE] WAS? PLEASE NAME ONLY DIFFICULTIES THAT LASTED AT LEAST THREE MONTHS.
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

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XT106
Difficulties remembering the year

DURING THE LAST YEAR OF [HIS/HER] LIFE, DID [{NAME OF THE DECEASED}] HAVE ANY DIFFICULTY REMEMBERINGWHAT YEAR IT WAS? PLEASE NAME ONLY DIFFICULTIES THAT LASTED AT LEAST THREE MONTHS.
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

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XT107
Difficulties recognizing

DURING THE LAST YEAR OF [HIS/HER] LIFE, DID [{NAME OF THE DECEASED}] HAVE ANY DIFFICULTY RECOGNIZINGFAMILY MEMBERS OR GOOD FRIENDS? PLEASE NAME ONLY DIFFICULTIES THAT LASTED AT LEAST THREE MONTHS.
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

If Introduction difficulties doing activities (XT020) > 0 and Introduction difficulties doing activities (XT020) != 96 »

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XT022
Anyone helped with adl

THINKING ABOUT THE ACTIVITIES THAT THE DECEASED HAD PROBLEMS WITH DURING THE LAST TWELVE MONTHS OF [HIS/HER] LIFE, HAS ANYONE HELPED REGULARLY WITH THESE ACTIVITIES?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

If Anyone helped with adl (XT022) = 1. Yes
5. No »


| | ========================================================================
| | 
XT023
Who has helped with adl

WHO, INCLUDING YOURSELF, HAS HELPED MAINLY WITH THESE ACTIVITIES? PLEASE NAME AT MOST THREE PERSONS. IWER:DO NOT READ OUTAT MOST THREE ANSWERS!CODE RELATIONSHIP TO DECEASED!
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yourself (proxy respondent)
2. Husband or wife or partner of the deceased
3. Mother or father of the deceased
4. Son of the deceased
5. Son-in-law of the deceased
6. Daughter of the deceased
7. Daughter-in-law of the deceased
8. Grandson of the deceased
9. Granddaughter of the deceased 10. Sister of the deceased 11. Brother of the deceased 12. Other relative 13. Unpaid volunteer 14. Professional helper (e.g. nurse) 15. Friend or neighbor of the deceased 16. Other person

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| | 
XT024
Time the deceased received help

OVERALL, DURING THE LAST TWELVE MONTHS OF [HIS/HER] LIFE, FOR HOW LONG DID THE DECEASED RECEIVE HELP? IWER:READ OUT
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Less than one month
2. One month or more but less than 3 months
3. 3 months or more but less than 6 months
4. 6 months or more but less than a year
5. A full year

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| | 
XT025
Hours of help necessary during typical day

AND ABOUT HOW MANY HOURS OF HELP WERE NECESSARY DURING A TYPICAL DAY?
- - - - - - - - - - - - - - - - - - - - - - - - -
0..24

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XT026B
The deceased had a will

SOME PEOPLE MAKE A WILL TO DETERMINE WHO RECEIVES WHAT PARTS OF THE ESTATE.DID [{NAME OF THE DECEASED}] HAVE A WILL?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

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XT027
The beneficiaries of the estate

WHO WERE THE BENEFICIARIES OF THE ESTATE, INCLUDING YOURSELF? IWER:READ OUTCODE ALL THAT APPLY
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yourself (proxy)
2. Husband or wife or partner of the deceased
3. Children of the deceased
4. Grandchildren of the deceased
5. Siblings of the deceased
6. Other relatives (specify) of the deceased
7. Other non-relatives (specify)
8. Church, foundation or charitable organization
9. Deceased did not leave anything at all (SPONTANEOUS)

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XT030
The deceased owned home

DID THE DECEASED OWN [HIS/HER] HOME OR APARTMENT - EITHER IN TOTAL OR A SHARE OF IT?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

If The deceased owned home (XT030) = 1. Yes
5. No »


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XT031
Value home after mortgages

AFTER ANY OUTSTANDING MORTGAGES, WHAT WAS THE VALUE OF THE HOME OR APARTMENT OR THE SHARE OF IT OWNED BY THE DECEASED? IWER:ENTER AN AMOUNT IN [POUNDS].
- - - - - - - - - - - - - - - - - - - - - - - - -
-50000000..50000000

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XT032
Who inherited the home of the deceased

WHO INHERITED THE DECEASED'S HOME OR APARTMENT, INCLUDING YOURSELF? IWER:CODE RELATIONSHIP TO DECEASED, ALL THAT APPLY
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yourself (proxy respondent)
2. Husband or wife or partner
3. Sons or daughters (ASK FOR FIRST NAMES)
4. Grandchildren
5. Siblings
6. Other relatives (specify)
7. Other non-relatives (specify)

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XT033
The deceased owned any life insurance policies

DID THE DECEASED OWN ANY LIFE INSURANCE POLICIES?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

If The deceased owned any life insurance policies (XT033) = 1. Yes
5. No »


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XT034
Value of all life insurance policies

IN TOTAL, ABOUT WHAT WAS THE VALUE OF ALL LIFE INSURANCE POLICIES OWNED BY THE DECEASED? IWER:ENTER AN AMOUNT IN [POUNDS]
- - - - - - - - - - - - - - - - - - - - - - - - -
0..50000000

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XT035
Beneficiaries of the life insurance policies

WHO WERE THE BENEFICIARIES OF THE LIFE INSURANCE POLICES, INCLUDING YOURSELF. IWER:CODE RELATIONSHIP TO DECEASED, ALL THAT APPLY.
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yourself (proxy respondent)
2. Husband or wife or partner
3. Sons or daughters (ASK FOR FIRST NAMES)
4. Grandchildren
5. Siblings
6. Other relatives (specify)
7. Other non-relatives (specify)

As CNT:= 1 to 5  » »

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XT037
The deceased owned type of assets

DID [HE/SHE] OWN ANY [BUSINESSES, INCLUDING LAND OR PREMISES/OTHER REAL ESTATE/CARS/FINANCIAL ASSETS, E.G. CASH, MONEY OR STOCKS/JEWELRY OR ANTIQUITIES]?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

If The deceased owned type of assets (XT037) = 1. Yes
5. No »


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XT038
Value type of assets

ABOUT WHAT WAS THE VALUE OF THE [BUSINESSES, INCLUDING LAND OR PREMISES/OTHER REAL ESTATE/CARS/FINANCIAL ASSETS, E.G. CASH, MONEY OR STOCKS/JEWELRY OR ANTIQUITIES] OWNED BY [{NAME OF DECEASED}] AT THE TIME OF [HIS/HER] DEATH? IWER:ENTER AN AMOUNT IN [POUNDS]
- - - - - - - - - - - - - - - - - - - - - - - - -
-50000000..50000000

If Number of children the deceased had at the end (XT039) > 1 and The beneficiaries of the estate (XT027) != 9 »

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XT040A
Total estate divided among the children

HOW WOULD YOU SAY WAS THE TOTAL ESTATE DIVIDED AMONG THE DECEASED'S CHILDREN? IWER:PLEASE READ OUT
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Some children received more than others
2. The estate was divided about equally among all children
3. The estate was distributed exactly [m]equally[/m] among the children
4. The children have not received anything received more than others

If Total estate divided among the children (XT040A) = 1. Some children received more than others
2. The estate was divided about equally among all children
3. The estate was distributed exactly [m]equally[/m] among the children
4. The children have not received anything received more than others »


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XT040B
Some children received more for caring

WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS TO MAKE UP FOR PREVIOUS GIFTS?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

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XT040C
Some children received more to give them financial

SUPPORT WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS TO GIVE THEM FINANCIAL SUPPORT?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

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XT040D
Some children received more for caring

WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS BECAUSE THEY HELPED OR CARED FOR THE DECEASED TOWARDS THE END OF [HIS/HER] LIFE?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

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XT040E
Some children received more for other reasons

WOULD YOU SAY THAT SOME CHILDREN RECEIVED MORE THAN OTHERS BECAUSE OF OTHER REASONS?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

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XT041
The funeral was accompanied by a religious ceremony

FINALLY, WE WOULD LIKE TO KNOW ABOUT THE DECEASED'S FUNERAL. WAS THE FUNERAL ACCOMPANIED BY A RELIGIOUS CEREMONY?
- - - - - - - - - - - - - - - - - - - - - - - - -
1. Yes
5. No

End of XT. End-of-Life Interview